The edge of medicine : stories of dying children and their parents / David J. Bearison with Linda Granowetter.

Pediatric end-of-life care raises exceedingly difficult questions: Is there a natural trajectory for children to die in hospitals or at home? How might we, in developmentally appropriate ways, involve children in end-of-life decisions?While there is no "correct" way to die, David Bearison...

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Bibliographic Details
Main Author: Bearison, David J.
Other Authors: Granowetter, Linda
Format: eBook
Language:English
Published: Oxford : Oxford University Press, ©2012.
Subjects:
Online Access:Click for online access

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100 1 |a Bearison, David J.  |1 https://id.oclc.org/worldcat/entity/E39PBJd8c4D3dCCQhdRWVy4pfq 
245 1 4 |a The edge of medicine :  |b stories of dying children and their parents /  |c David J. Bearison with Linda Granowetter. 
260 |a Oxford :  |b Oxford University Press,  |c ©2012. 
300 |a 1 online resource 
336 |a text  |b txt  |2 rdacontent 
337 |a computer  |b c  |2 rdamedia 
338 |a online resource  |b cr  |2 rdacarrier 
504 |a Includes bibliographical references and index. 
505 0 |a Pediatric end-of-life care and talking about it -- Narratives, narrative medicine and procedures -- Twenty stories about children dying -- Narratives from children who are dying and their parents -- Narratives about families, friends, and hospital practices. 
588 0 |a Print version record. 
520 |a Pediatric end-of-life care raises exceedingly difficult questions: Is there a natural trajectory for children to die in hospitals or at home? How might we, in developmentally appropriate ways, involve children in end-of-life decisions?While there is no "correct" way to die, David Bearison concludes that all end-of-life issues in pediatrics boil down to finding ways to respect and honor what patients, under the purview of their families, find is best for them. This issue is conceptually simple, but practically complex, as Dr. Bearison highlights in The Edge of Medicine. The book tells the stories of dying children and their families, capturing the full range of uncertainties, hopes and disappointments, and ups and downs of children near the end of life. The Edge of Medicine serves as the perfect follow-up to David Bearison's When Treatment Fails: How Medicine Cares for Dying Children, which is based on the narratives of hospital staff caring for dying children (and their families). Together with its prequel, The Edge of Medicine presents a more complete picture of what happens when everyone involved, from medical staff to patients and their families, is struggling with pediatric end-of-life care. Dr. Bearison relies on narrative to bridge the disconnect among abstract theories, medical technologies, and clinical realities 
650 0 |a Terminally ill children. 
650 0 |a Terminal care. 
650 0 |a Parent and child. 
650 0 |a Children. 
650 0 |a Narrative medicine. 
650 0 |a Terminally ill. 
650 7 |a children (people by age group)  |2 aat 
650 7 |a terminally ill.  |2 aat 
650 7 |a HEALTH & FITNESS  |x Children's Health.  |2 bisacsh 
650 7 |a MEDICAL  |x Pediatrics.  |2 bisacsh 
650 7 |a Terminally ill  |2 fast 
650 7 |a Narrative medicine  |2 fast 
650 7 |a Children  |2 fast 
650 7 |a Parent and child  |2 fast 
650 7 |a Terminal care  |2 fast 
650 7 |a Terminally ill children  |2 fast 
655 0 |a Electronic books. 
700 1 |a Granowetter, Linda.  |1 https://id.oclc.org/worldcat/entity/E39PCjHg8fbhwtdb4rxhDyFCpK 
758 |i has work:  |a The edge of medicine (Text)  |1 https://id.oclc.org/worldcat/entity/E39PCFRPqRGd4C9McRytvM89WC  |4 https://id.oclc.org/worldcat/ontology/hasWork 
776 0 8 |i Print version:  |a Bearison, David J.  |t Edge of medicine.  |d Oxford : Oxford University Press, ©2012  |z 9780195389272  |w (DLC) 2011052896  |w (OCoLC)769803463 
856 4 0 |u https://holycross.idm.oclc.org/login?auth=cas&url=https://academic.oup.com/book/1956  |y Click for online access 
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