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00000cam a2200000M 4500 |
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ocn814454029 |
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OCoLC |
| 005 |
20240809213013.0 |
| 006 |
m o d |
| 007 |
cr un|---uuuuu |
| 008 |
121012s2003 xx o 000 0 eng d |
| 040 |
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|a IDEBK
|b eng
|e pn
|c IDEBK
|d OCLCQ
|d EBLCP
|d OCLCQ
|d MERUC
|d ZCU
|d ICG
|d OCLCO
|d OCLCF
|d AU@
|d OCLCQ
|d DKC
|d OCLCQ
|d QGK
|d OCLCO
|d OCLCQ
|d OCLCO
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| 019 |
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|a 1259141989
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|a 1280465328
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|a 9781280465321
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|a 9786610465323
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| 020 |
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|a 6610465320
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|a 1423721683
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|a 9781423721680
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|a 9047402936
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| 020 |
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|a 9789047402930
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| 024 |
7 |
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|a 10.1163/9789047402930
|2 DOI
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| 035 |
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|a (OCoLC)814454029
|z (OCoLC)1259141989
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| 050 |
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4 |
|a TL236.28
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| 072 |
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7 |
|a LBB
|2 bicssc
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| 072 |
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7 |
|a LAW
|x 051000
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| 072 |
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7 |
|a POL
|x 035010
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| 049 |
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|a HCDD
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| 245 |
0 |
0 |
|a Populations and Genetics :
|b Legal and Socio-Ethical Perspectives.
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| 260 |
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|b BRILL
|c 2003.
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| 300 |
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|a 1 online resource (669 pages)
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| 336 |
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|a text
|b txt
|2 rdacontent
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| 337 |
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|a computer
|b c
|2 rdamedia
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| 338 |
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|a online resource
|b cr
|2 rdacarrier
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| 505 |
0 |
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|a Acknowledgements -- In memoriam -- Prologue -- Contents -- Section 1 -- Of Biobanks and Databases -- UK DNA Sample Collections for Research -- Estonian Genome Project -- Large Scale Health Status Description and DNA Collection -- Surveying the Population Biobankers -- The Israeli DNA and Cell Line Collection: A Human Diversity Repository -- DNA Data Bank of Japan as an Indispensable Public Database -- A Survey of the Variability of DNA Banks Worldwide -- An Empirical Survey on Biobanking of Human Genetic Material and Data in Six EU Countries -- Mutation Databases and Ethical Considerations.
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| 505 |
8 |
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|a Section 2 -- Of Populations and Communities -- Community Engagement in Genetic Research: The "Slow Code" of Research Ethics? -- Competing Perspectives on Reasons for Participation and Non-Participation in the North Cumbria Community Genetics Project -- The Engagement of Consumers in Genetics Education: Lessons Learned -- Racial Profiling of DNA Samples : Will it Affect Scientific Knowledge About Human Genetic Variation? -- Problematizing the Notion of "Community" in Research Ethics -- On the Intersection of Privacy, Consent, Commerce and Genetics Research.
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| 505 |
8 |
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|a A Presumed-Consent Model for Regulating Informed Consent of Genetic Research Involving DNA Banking -- Ethical and Legal Issues in Genetic Biobanking -- Do the Ethical Duties of Donor, and Administrators, Depend on Whether the Database is Public or Private? -- Public Attitudes to Participating in UK Biobank : A DNA Bank, Lifestyle and Morbidity Database on 500,000 Members of the UK Public Aged 45-69 -- Section 3 -- Of Commerce, Patents and Benefit-Sharing -- Commercial Biobanks and Genetic Research: Banking Without Checks?
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| 505 |
8 |
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|a PXE International : Harnessing Intellectual Property Law for Benefit-Sharing -- Advances in Science and Progress of Humanity: A Global Perspective on DNA Sampling -- Benefit-Sharing in the New Genomic Marketplace: Expanding the Ethical Frame of Reference -- Harmonizing Commercialisation and Gene Patent Policy with Other Social Goals -- Preliminary Data on U.S. DNA Based Patents and Plans for a Survey of Licensing Practices -- Towards a Universal Definition of "Benefit-Sharing" -- Do Patents Encourage or Inhibit Genomics as a Global Public Good?
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| 505 |
8 |
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|a Patents and Benefit-Sharing as a Challenge for Corporate Ethics -- Pharmaceutical Patents and Benefit-Sharing: Evolution of Drug Accessibility in Brazil since the 1980's -- Reconciling Social Justice and Economic Opportunism: Regulating the Newfoundland Genome -- Section 4 -- Of Information and Discrimination -- Attitudes to Genetic Research and Uses of Genetic Information: Support, Concerns and Genetic Discrimination -- Genetic Information and Insurance: Some Issues -- Discrimination -- "Genetic Discrimination" in an International Context.
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| 520 |
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|a Thirty-five papers from the third International DNA Sampling Conference, held in Montreal in September 2002, provide a critical discussion of the socio-ethical and legal issues surrounding DNA sampling in communities and populations around the globe. Contributors address topics related to biobanks and databases; community engagement; confidentialit.
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| 504 |
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|a Includes bibliographical references and index.
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| 546 |
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|a English.
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| 650 |
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0 |
|a Medical genetics
|x Law and legislation
|v Congresses.
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| 650 |
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0 |
|a DNA fingerprinting
|x Law and legislation
|v Congresses.
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| 650 |
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0 |
|a Human population genetics
|x Moral and ethical aspects
|v Congresses.
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| 650 |
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7 |
|a DNA fingerprinting
|x Law and legislation
|2 fast
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| 650 |
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7 |
|a Medical genetics
|x Law and legislation
|2 fast
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| 655 |
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7 |
|a Conference papers and proceedings
|2 fast
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| 700 |
1 |
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|a Knoppers, Bartha Maria.
|4 edt
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| 776 |
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|z 90-04-13678-9
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| 856 |
4 |
0 |
|u https://ebookcentral.proquest.com/lib/holycrosscollege-ebooks/detail.action?docID=253657
|y Click for online access
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| 903 |
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|a EBC-AC
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| 994 |
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|a 92
|b HCD
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