Rare a film by Maren Grainger-Monsen and Nicole Newnham ; produced & directed by Maren Grainer-Monsen & Nicole Newnham ; Helianthus Media.
RARE follows an extraordinary mother in a race against time to find a treatment for her daughter's rare genetic disease. When Donna Appell learned that her infant daughter Ashley had an extremely rare genetic disease that would kill her in thirty years, she set out to track down every person in...
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